When I first started researching FPIES, I found very little information that wasn't jumbled up in some medical journal that required a Ph.D to understand. Today, a dear friend forwarded me the link to an article posted on the ABC News website. The article is titled, Toddler Landon Schultz Eats Only 5 Foods or Goes Into Shock (written by Susan Donaldson James). The article details the experience of a two-year-old little boy with a devastatingly severe case of FPIES, and how it has frightfully ruled his life and those of his family members since he was two weeks old. As far as I am aware, it is the first time FPIES has drawn the attention of the network news or any other major mainstream media outlet, and therefore reached and entirely new, ENORMOUS, influential and important audience.
Landon's family has gone to great lengths to shine a spotlight on FPIES. Through the Children's Hospital of Philadelphia, they started the FPIES United Family Fund in hopes of creating awareness and developing research.
This could be the start of something BIG for the FPIES community!
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