I got an email from one of my close friends alerting me to something she'd stumbled upon, Dr. Leickly's Allergy Blog (you might remember the allergist from Riley who had never heard of FPIES and sported a rough bedside manner). Well, turns out Claire's visit with him made a lasting impression. Since meeting us, he's looked further into FPIES and has joined the conversation. Dr. Leickly attended a conference in New Orleans and heard Dr. Sicherer (the doctor/researcher that I reached out to at Mt. Sinai the day after we were diagnosed) speak on the topic. He then spoke to an audience of general pediatricians at a conference here in Indianapolis, pertaining to Perplexing Childhood Allergies, and passed along the information on FPIES.
Praise God.
I hope that word of FPIES spreads like wildfire. I continue to hope for effective methods of testing for trigger foods, so that FPIES families no longer need to "experiment" with children as we navigate the minefields of food trials. Lastly, I pray that FPIES will become common knowledge in medical circles, so that families will no longer be met with blank stares or brick walls from those we rely on for medical care and treatment. The children deserve better than that.
Dr. Leickly has redeemed himself :) Here's a link to his post http://www.pediatricallergyindy.com/2010/02/17/fpies-food-protein-induced-enterocolitis-syndrome/
Wednesday, August 11, 2010
Claire Turned One!
During our trip to California, our baby girl turned one! We celebrated this momentous day with a Clairey-friendly carrot birthday cake with cream cheese frosting. I spent over two hours concocting her smash cake and it took minutes before she lost interest :) It didn't matter though, it was the birthday cake that I didn't think I'd get to make. For a long time, I was afraid I'd be sticking a birthday candle in her peach puree... We are counting our many blessings that her first year wrapped up on such an incredible high note :) Here's the recipe for Claire's cake (I made the carrot cake and used chopped dried apricots in place of raisins) http://www.wholesomebabyfood.com/tipFirstBDay.htm
There never was a healthier birthday cake :)
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