Today we had our follow-up appointment with Dr. Hubbard, our first allergist. It was a 30 minute Q & A session. While I didn't learn anything earth-shattering, he did a super-duper job of reassuring me that we're doing all the right stuff.
We established that Claire's proctitus to cow's milk (the blood in her stools) is far less dangerous, but an allergy to the protein, nonetheless. The encouraging distinction between her proctitus and her FPIES (to oats and rice/sweet potatoes), is that she should outgrow the proctitus by her first birthday or shortly afterwards. Great, great news...
We also talked further about the skin prick testing that he performed last time. He tested her for oats, milk, soy, wheat, eggs & peanuts and all of them came back negative. I was about to start skipping around his office when he told me that a negative allergy test now doesn't mean she won't develop allergies to those foods over time. How on earth am I NOT going to be paranoid?
Last (and best), he validated my efforts to be seen by Dr. Liekly at Riley Children's. At Riley, we will have the option to do ATOPY testing if we choose to go that route, we will have access to all of the knowledge and experience of an expert in childhood allergies, and we can ask for a referral to see a dietitian. I hadn't given much thought to seeking out a dietitian before today, but I am eager now! It is imperative to me that I am meeting all of Claire's nutritional needs without putting her in danger of ingesting her trigger foods. I hope that by meeting with a dietitian, we can collaborate over a detailed road map for Claire's future food trials while maintaining her consumption of healthy, well-balanced meals on a day-to-day basis.
Only six more days before Dr. Liekly will open another door for us!
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I love the addition of your hurray/triggers lists!!! Glad you're finally into Drs offices and not just waiting. I hope the next 6 days go fast!!!
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