Hopeful

I feel so lucky by the response that I have gotten from this blog so far!

Thank you to all of the moms that have reached out with helpful advice and encouragement. I can't tell you how hopeful it makes me when I hear about the little and BIG successes of other families who are further down this road. Please don't stop sharing your tips... I feel like we're in a brief "grace period" with Claire before we roll up our sleeves and test some foods. I want a PhD in Nutrition by the time we get started :)

I got a response from Dr. Sicherer from Mt. Sinai Hospital in New York. While he couldn't give medical advice via email, he did point me in a direction to find additional specialists with interests with food allergies in our area. He's also written a book, “Understanding and managing your child’s food allergies” with a section on FPIES. I hope Amazon gets it here in a hurry :) It might seem small, but I feel like these little breakthroughs bring us closer to good news.

As for the end of our "grace period", I still have to do a bit more research and seek out a GI doctor at Riley Children's and talk to our allergist about the ATOPY patch test before I can call it over. Dr. Sicherer didn't give me quite the answer that I was hoping for, while another medical journal article seemed more promising. Does anyone have any thoughts or positive/negative experiences with the ATOPY test?